The good news is.......(drum roll please)......I DONT HAVE WILSONS!!!! Great right?? I'm don't recall whether I told you all but I went to get a second opinion on this fatal disease that I had been diagnosed with..I went to a Gastro doctor. He looked at all my tests that the previous doctor had given me and all he could say was "From what I'm looking at, your previous doctor had 3 good reasons why you DONT have WD, but I will take some blood and test your ceruloplasmin to double check that" Needless to say, he took the blood and two days later the test came back and I don't have WD!
Now, don't get me wrong, I was excited that I did not have the fatal disease that I had been living with and going through treatments for 6 months, but the doctor still did not know why I was having all these symptoms! The gastro doc said that he suggested a colonoscopy (Upper and Lower GI) to see why the other symptoms were occurring but for my smurf-like qualities he suggested a dermatologist. The colonoscopy is scheduled for October 6th.
So then I was off to the dermatologist, he surprisingly had a cancellation at last minute so I got in the following Friday. The derma doc diagnosed me with chromhidrosis. Another long word but ironically that is a rare disease that one gets when he or she secretes colored sweat. Now you tell me, why did my primary care physician see that? That is precisely the reason that I am not returning to that doctor and on the search for a new physician.
Back to chromhidrosis, that disease is so rare that there is not a treatment that has ultimately worked. My derma doc said he wasn't very optimistic about the whole thing. So yet again, another rare disease on my part. To define chromhidrosis, it is basically a bacterial infection but when it meets something in my body it turns my sweat blue. The only problem is that since we don't know what bacteria this is and how I got it, the docs don't know what medicine to give me. My doctor gave me some pill to take for a month then return to see him. So, who knows what will happen.
That is basically the short/long version update of my health stuff...now onto a funny thing that happened:
Last night, I was a little out of wack...off the wall...losing it...sort of. And my best friend/roommate asked me in complete seriousness, "Are you on drugs?" I mean there was no sarcasm or humor in her voice at all. It was hilarious! Rest assured, I am not doing drugs of any kind but the fact that my best friend who knows that I would never touch drugs had the nerve to ask me that....I must have been pretty much out of it...or neurological problems? HAHA!
I have written too much about the past that I must skip my thoughts for the evening and end my post here. Hope you all have a wonderful evening.
Until next time...
2 comments:
Myra, glad to hear that you don't have Wilson's. Erik questioned that diagnosis all along because it just didn't sound like Wilson's from everything he knew about it. What pill did the doctor put you on for this new skin/sweat disorder?
Miss you!
Hey Kara, the pill that I'm taking is called Erythromycin...The doc gave me a month's supply then I will go back and see the doctor! Sorry it took me so long to get back to you!
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